7chile

The Chilean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ)

M. Miranda¹, N. Ruperto², M.S. Toso³, L.W. Lira⁴, B. Gonzalez⁵, X. Norambuena⁶, A. Quezada⁷, J. De Inocencio⁸, C. Mendez⁹, for the Paediatric Rheumatology International Trials Organisation (PRINTO)

¹Universidad de Chile/Hospital San Juan de Dios-SSMOccidente, Santiago-Chile; ²Laboratorio di Informatica Medica, IRCCS S. Matteo, Pavia, Italy; ³Hospital Militar de Santiago, ⁴Hospital de Carabineros, ⁵Universidad de Chile/Hospital L.C.Mackenna-SSMOriente, 6Hospital Exequiel González Cortés, SSMSur, ⁷Universidad de Chile/Hospital Exequiel Gonz‡lez Cortés, SSMSur, ⁸C.S. Estrecho de Corea, Madrid, Spain;⁹Universidad Católica de Chile, Santiago-Chile.

ABSTRACT
We report herein the results of the cross-cultural adaptation and validation into the Chilean language of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children independently from the underlying disease. The Chilean CHAQ-CHQ were derived from the European Spanish version with changing of the few words whose use is different in the 2 countries. A total of 126 subjects were enrolled: 72 patients with JIA (29% systemic onset, 39% polyarticular onset, 4% extended oligoarticular subtype, and 28% persistent oligoarticular subtype) and 54 healthy children. The CHAQ clinically discriminated between healthy subjects and JIA patients, with the JIA patients having a higher degree of disability, pain, and a lower overall well-being when compared to their healthy peers. Also the CHQ clinically discriminated between healthy subjects and JIA patients, with the JIA patients having a lower physical and psychosocial well-being when compared to their healthy peers.
In conclusion the Chilean version of the CHAQ-CHQ is a reliable, and valid tool for the functional, physical and psychosocial assessment of children with JIA.

Key words
Chilean Childhood Health Assessment Questionnaire (CHAQ), Chilean Child Health Questionnaire (CHQ), cross cultural adaptation and psychometric evaluation, health related quality of life, juvenile idiopathic arthritis (JIA), healthy children.

Supported by a grant from the European Union (BMH4-983531 CA), and by IRCCS Policlinico S. Matteo (Pavia, Italy).

Please address correspondence and requests for reprints to either: Marta Ines MirandaAguilera , MD, Avenida Eliodoro Yañez 2885/31, 6651323, Providencia, Santiago-Chile. E-mail: nicasio@entelchile.net
or the PRINTO, IRCCS Policlinico San Matteo, Pediatria Generale e Reumatologia, Piazzale Golgi no. 2, 27100 Pavia, Italy.
E-mail: nruperto@smatteo.pv.it
WWW: http://www.medit.it/printo/