A database in private practice: the Brooklyn Outcomes of Arthritis Rheumatology Database (BOARD)

Y. Yazici

New York University School of Medicine, Hospital for Joint Diseases, New York, New York, USA.

ABSTRACT
Rheumatologists generally use few quantitative measures in making clinical decisions. In the US, fewer than 10% use questionnaires in routine clinical care, and fewer than 15% perform a formal joint count at each visit. Patient questionnaires are the quantitative tools rheumatologists have to monitor their patients’ health status and response to therapy. The health assessment questionnaire (HAQ) and its derivatives have been shown to be the best predictors of functional and work disability, costs, joint replacement surgery and mortality; they are as good as and usually better predictors than joint counts, radiographs and laboratory tests. The Brooklyn Outcomes of Arthritis Registry Database was initiated with the aim of collecting quantitative data using a multi-dimensional health assesment questionnire (MDHAQ) from all rheumatology patients seen as part of routine care, each and every time the patient was seen. Data that are feasible to collect in routine clinical care provide the only way to assess quantitatively how our patients are doing. If data are not collected and recorded, an opportunity is lost forever. If there is a reason for the visit, there is a reason to complete a questionnaire.

Key words
MDHAQ, patient questionnaires, routine care, databases.

Please address correspondence to: Yusuf Yazici, MD, 246 East 20th Street, New York, NY 10003, USA.

Clin Exp Rheumatol 2005; 23 (suppl. 39): S182-S187.
© CLINICAL AND EXPERIMENTAL RHEUMATOLOGY 2005.