Studies, databases and registries
The National Data Bank for Rheumatic Diseases (NDB)
K. Michaud1
- National Data Bank for Rheumatic Diseases, Wichita, KS; and University of Nebraska Medical Center, Omaha, NE, USA. kaleb@ndb.org
CER9970
2016 Vol.34, N°5 ,Suppl.101
PI 0100, PF 0101
Studies, databases and registries
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PMID: 27762196 [PubMed]
Received: 29/09/2016
Accepted : 30/09/2016
In Press: 19/10/2016
Published: 20/10/2016
Abstract
The National Data Bank for Rheumatic Diseases (NDB) is a longitudinal observational patient-driven database, founded as a non-profit research organization in 1998 by Dr. Frederick Wolfe. Patients are sent a primary questionnaire twice a year. More than 50,000 patients with more than 100 various rheumatic diseases under the care of more than 1,500 rheumatologists have completed at least one 6-month questionnaire. Many important publications concerning rheumatoid arthritis, osteoarthritis, systemic lupus erythematosus, fibromyalgia, and pharmaco-epidemiology have resulted from NDB research.
