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Patients with juvenile idiopathic arthritis become adults: the role of transitional care

1, 2, 3, 4, 5

 

  1. Rheumatology Unit, Dipartimento di Medicina Interna e Specialità Mediche, Sapienza Università di Roma, Italy. fabrizio.conti@uniroma1.it
  2. Reumatologia dell’Età Evolutiva, UC di Reumatologia, ASST-Pini-CTO, Università di Milano, Italy.
  3. Medical Department, Pfizer Italia, Rome, Italy.
  4. Università degli Studi di Genova and Istituto Giannina Gaslini, Genoa, Italy.
  5. Division of Rheumatology, Ospedale Pediatrico Bambino Gesù, Rome, Italy.

CER10863
2018 Vol.36, N°6
PI 1086, PF 1094
Reviews

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PMID: 29652654 [PubMed]

Received: 04/10/2017
Accepted : 01/02/2018
In Press: 13/04/2018
Published: 06/12/2018

Abstract

Most juvenile idiopathic arthritis (JIA) patients need to attend adult rheumatology centres to continue the clinical management of their disease and to receive adequate long-term treatment. Transition from the paediatric to the adult health care team is a critical moment in the clinical history of these patients, but unfortunately, about 50% of the transfer processes to adult rheumatology are not successful, putting these patients at high risk of unfavourable outcomes. There are several obstacles to the success of transitional care for JIA patients, such as the absence of specific criteria for the assessment of disease activity, the lack of specific treatment recommendations for JIA adult patients, the poor adolescent-specific training for adult rheumatologists, and the shortage of resources. The improvement in the transition process in medical care has become a priority in many health care systems, but not many studies evaluating transition models, and common methodologies for measuring transition outcomes are available. The aim of this review is to identify and describe the models of transitional care in JIA, providing insights and recommendations to develop effective transitional care models in this disease.

Rheumatology Article